Platelets and bottles

Well today wasn't as bad as I thought it would be. Mom and dad went to see Charli early in the morning and sent me some pictures and updates to keep me happy until I could get there. When we got there our little bean was all snuggled up and sleeping soundly. Unfortunately she had a blowout and her out fit had to be changed. This is the first time we have had to change her clothes and it is not easy with all the wires. It took both of us to do it and it still took a long time, so she was wide awake and unhappy by the time we were done.

In my new outfit that Mom and Dad put on me.

We talked to her nurse and she told us that she tried to give her a bottle this morning but she really wasn't interested. I called at 9 tonight and the nurse said the same thing. I don't know what we are going to do with her, doesn't she know she has to take a bottle before she can come home with us!? The good news is she will suck on her pacifier while she is getting a feeding from her tube. I guess baby steps will do for now ;) She now weighs 3lb 10oz!! She is turning into a regular chunk.

They also repeated her platelets this morning and they were down to 21,000. I'm really bummed about this because we were so encouraged by her numbers yesterday. They said they were going to repeat them at 8 tonight and 8 in the morning. When I called around 9 the lab work wasn't back yet so if I'm still up I'll call back around 10. We still don't know what is causing her platelets to drop but we hope we find out soon. Its so frustrating because if they don't know what is causing it they can't fix it. Well I called back and the new count is 42,000 so hopefully they are on there way back up!

I have the hiccups and I am very concerned about it!